Problem Solving in Patient-centred and Integrated Cancer Care

People benefit from integrated health and social care with the patient at the heart. Key aspects are examined and best practice and evidence are presented in a series of case studies, in this first guide for cancer physicians and allied professionals. This guidebook is also designed to support community health and care workers. SECTION ONE Perspectives 1. Patient-Centred and Integrated Cancer Care, Peter Selby, 1 Ruth E. Board, Galina Velikova 2. Monitoring of Symptoms, Toxicity and Functioning Using Patient- 6 Reported Outcome Measures, Alexandra Gilbert, Peter Selby, Galina Velikova 3. Assessment of Psychological Distress in Cancer, Jane Younger 14 4. Patient-Centred Decision Making: Communication Challenges, 19 Lesley Fallowfield, Peter Selby 5. Patient Engagement and Empowerment: Key Components of Effective 24 Patient-Centred Care, Hugh Butcher, Peter Selby 6. How Can the GP Support the Patient through the Whole Cancer Journey? 31 Sinead Clarke, Pete Nightingale, Anthony Cunliffe 7. Making a Difference: the True Value of Voluntary Sector and NHS 36 Collaboration for Cancer Patients, Carers and Families, Laura Lee 8. Cancer Survivorship, Lynn Calman, Claire Foster 39 9. Survivorship and Rehabilitation: Recommendations from a European 45 Perspective, Tit Albreht, Christine Berling, Claudia Ferrari, Stein Kaasa, Luzia Travado 10. Improving Quality of Life after Cancer Treatment, Jane Maher, 50 Lesley Smith, Louisa Petchey 11. Integration of Palliative Care Support into Oncology Practice, 58 Lucy Ziegler, Michael I. Bennett 12. Integration of Supportive Care into Oncology Clinics Ensures Best 61 Practice for Patients with Metastatic Cancer, Tracey Coleby, Lorraine Turner, Andrew M. Wardley 13. Integration of Cancer Care between Primary Care and Hospitals, 64 Peter Selby, Geoff Hall, Ladislav Dusek, Fotios Loupakis, Lucio Luzzatto, Tit Albreht, Richard D. Neal, Rob Turner, Sean Duffy Contents 14. Psychosexual Difficulties after Cancer, Isabel White, Justin Grayer 71 15. Social Difficulties of Cancer Patients, Penny Wright, Peter Selby 78 16. Complementary Therapies in Patient-Centred and Integrated Cancer Care, 83 Jacqui Stringer 17. Fertility Issues in Cancer Treatment, Rebecca Lee, Anne Armstrong 87 18. Embedding Patient and Public Involvement and Engagement in a Cancer 92 Research Centre, Jim Fitzgibbon, Kate Cleary, Annmarie Nelson SECTION TWO Case studies 1. A Young Adult with Sarcoma: a Case of Complexities, 97 Anna Olsson-Brown, Jane Younger 2. Cancer of Unknown Primary Treated with Palliative Chemotherapy 102 and Hospice Care, Nicola Hughes, Daniel Swinson, Emma Lowe 3. A Patient with Advanced Oesophageal Cancer Requiring Interventional 106 Radiology and Palliative Care Input, Mark Openshaw, Sam Khan, Meera Chauhan, Laura Clipsham, Anne Thomas 4. A Metastatic Breast Cancer Patient Who Was Suicidal and Refused 112 Treatment, Kok Haw Jonathan Lim, Bethan Daniel, Tracey Coleby, Andrew M. Wardley 5. Metastatic Adenocarcinoma of the Lung, Vinton Cheng, 117 Denis Talbot 6. Lessons Learnt from a Deaf Patient with Ovarian Cancer, 124 Nicola Flaum, Jurjees Hasan 7. A Young Man with Undiagnosed Autistic Spectrum Disorder and 129 Hodgkin's Lymphoma, Alexandra R. Lewis, Kim Linton 8. A T3N1 Oesophageal Adenocarcinoma Patient Refusing Curative 134 Surgery for Seemingly Irrational Reasons, Maung Maung Myat Moe, Clare Kane, Cate Simmons, Lucinda Melcher 9. A Patient with Brain Cancer: from Diagnosis to Treatment, Yin Zhou 139 10. A Woman Presenting to Primary Care with Painful Bone Metastases, 144 Lucy Flanders, Mulyati Mohamed, Pauline Leonard 11. Management of Psychological and Behavioural Challenges in a 149 Patient with Glioblastoma, Suryanarayana Kakkilaya, Jane Younger 12. Psychological Therapy to Aid Tablet Taking in Cancer Treatment, 153 Lesley Seddon, Fiona James, Ruth E. Board 13. Treatment Challenges in a Patient with Metastatic Breast Cancer, 159 Helen Adderley, Elena Takeuchi vi Contents 14. Treatment of Cervical Cancer during Pregnancy and Management of 163 Late Effects, Alexandra Gilbert, Kate Cardale, Galina Velikova 15. A Patient with Prostate Cancer with Ureteric Obstruction and Complex 169 Social Issues, Charlotte Richardson, Iva Damyanova 16. Integrated Care When Cancer Is Diagnosed in Pregnancy, 173 Richard Simcock, Pete Wallroth 17. Integrated Care in the Treatment of Head and Neck Malignancy, 177 Siobhan Morrison, Andrew Fishburn, Anne Carter, Rachel Hewitson, Katy Everson, Muthiah Sivaramalingam 18. Vulvovaginal Pain after Breast Cancer Treatment, Josie Butcher 182 19. Use of Patient-Reported Outcome Measures to Enhance Follow-Up 188 after Germ Cell Tumour Treatment, Oana C. Lindner, Dulani Ranatunge, Dan Stark 20. A Young Woman with Advanced Gastric Cancer, Gemma Dart, 196 Alison Young 21. A Patient with Metastatic Breast Cancer, Alicia-Marie Conway, 201 Elena Takeuchi 22. A Patient with Melanoma, Severe Psychosis on Steroids, and Multiple 205 Other Issues, Hariharan Kuhan, Gail Prout, Paul Nathan Index 210.